Children With Cancer Fund
Children With Cancer Fund
Children With Cancer Fund (Polegate)
5 Western Avenue, Polegate, East Sussex, BN26 6EP Tel: 01323 488561 Registered Charity No.1110644

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Samuel’s Story


Below is Samuel’s story which was sent to us by his dad, Dominic:

Samuel is every parents dream child, cheeky, happy, fun loving and the dirtiest laugh ever.

On the 6th May 2011, following a visit to his G.P., Samuel was rushed to the Royal Alexandra Hospital, Brighton, with suspected meningitis, as he had an unexplained rash of spots. A series of blood tests revealed that he actually had Acute Lymphoblastic Leukaemia and was immediately transferred to the Royal Marsden Hospital, Surrey, for 3 weeks of intensive chemotherapy. A special port was inserted under his skin to allow medical staff to take blood samples, or to administer medication such as chemotherapy or general anaesthetics, which is accessed via a special needle, known as a wriggly.

After 6 months of intensive chemotherapy, Samuel was moved on to the maintenance cycle of treatment, which requires two and a half years of low dosage chemo’s, with weekly blood tests at home, quarterly lumbar punctures at the Royal Alexandra.

Our first contact with the Children With Cancer Fund was via our Clic Sargent Social Worker, who had alerted the fund about our plight. We arrived home from the Royal Marsden to find a letter of introduction, with a Tesco voucher to buy some much needed groceries, as our fridge was empty of supplies.

With Christmas approaching, Chris contacted us about a ’Wish list’ for the family. Samuel was given a toy car transporter, which was the same as the one he played with while in hospital. We were also provided with a Ninetendo Wii for home entertainment, while he was neutropenic, and unable to go out. Hayley and I were treated to a trip to the theatre, to see ’Mamma Mia’, as we had not spent any time apart from him, since his diagnosis.

As the chemotherapy began to affect his body in different ways, his muscles and nerve ending began to weaken, with poor responses from his reflexes. He also developed severe pain in his feet, especially after one type of chemo was administered, which made walking difficult, sometimes impossible. The fund came to his rescue by providing him with an extra large buggy, so that he could be transported to and from nursery school, hospital or around the shops.

As Samuel’s condition improved, we were able to enjoy more social events with the CWCF. As a family, we enjoyed trips to Knockhatch, Pantomimes and BBQs, which gave us the opportunity to meet up with other families and share experiences.

Dominic Lyons

Samuels Father

Samuel Samuel Samuel

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